Transformation is a process, and as life happens there are tons of ups and downs. It’s a journey of discovery – there are moments on mountaintops and moments in deep valleys of despair. 

I am going through a process of life-changing transformation since I’ve been diagnosed with auto-immune disease few years ago. You can read the details here.  I rarely talk about it. Not even to my nearest and dearest. I don’t want to talk about it. Not even when the reality is staring me right in the face. No, I am not in denial. I long past that stage. I just don’t want to concentrate on it. I rather focus on the positive side of things. Make the most of what I still have and can do instead of what I cannot do. My options are limited and keep getting narrower by the day but I still refuse to give up.

Okay, I can’t hike 25 km anymore, but a four km evening walk will also do. The pain keeps me from sleeping so, I write instead. Good exercise for my slowly rotting brain. I still garden but not intensive. Only when I feel I’m up to it. I can’t work for a company anymore. My condition is so volatile to adapt to a normal working schedule so, we set up our own small design and technology company and try our best to get if off the ground. Life is not easy. Never been. I’m used to that. But I am far from resigning. I recently published my first E-book  And there are five more in queue. 

Maybe nobody would buy them. But what counts for me is the fact that I did it and it’s out there. In between, I’m busy writing my memoirs and another novel I am planning to finish before my brain will fully deteriorate. I can still enjoy loads of things, like golden hour, reflections of something on the water, the colors of flowers, droplets of rain on their petals; rainbow, birds in my backyard, architecture, smiles of strangers and random kindness.

I will continue pushing my boundaries despite of obstacles. It is better to be out there fighting than sit and wait for the inevitable to happen. Not every day is roses and moonshines. In fact, seldom. But those little wonderful moments when I can think clearly and feel passionately I’m holding on and use as my anchor to keep me grounded and strong when the tide is fierce and there is storm looming in the horizon. Not so many people would understand. Especially when I show no weakness. Playing a victim will never be my forte. I don’t want understanding or compassion. Those are tricky to get anyway. Genuine ones I mean. I just want to continue minding my life the way I see fit. Without prejudices, without judgment from others.